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Life’s unexpected turns: Marwar’s journey

07/03/2024

Marwar Uddin is a father and stroke survivor from Bow. Together we explored how he’s navigated life since, the impact on his family, his advocacy work, and the crucial role of Farzana, our Safeguarding Advisor, in his rehabilitation.

Meet Marwar Uddin, a confident and charming 42-year-old from Bow. He is an advocate for stroke survivors with an important presence on various platforms.

Marwar has tens of thousands of views on TikTok, has been featured in stroke awareness publications for the Stroke Association on Thriving After Stroke and spoke to ministers at the Houses of Parliament about his journey.

In 2022, he experienced a stroke at work, leading him to admirably adapt to his new normal. We sat down with Marwar and Farzana our safeguarding advisor, to delve into his experiences, the impact on his family life, his advocacy for stroke awareness, and the role Farzana and Poplar HARCA have had in his rehabilitation.

Please can you tell us a bit about what your life was like before the stroke?

Marwar: ‘‘So, before my stroke I was a family man. I was a devoted family man. I have three children. I used to do what any family man would do so, dropping my kids off to school, picking them up, taking them to after school clubs, taking them swimming. We used to go out in the evening to have a bite to eat. We used to go on holidays, you know. I always put them first, they’re my life and soul. I completely love them to bits. You know my wife, I’ve been with her and married for 20 years now, she’s the most amazing person you can ever meet.

I was career driven as well, just like any happy go lucky person full of life, you know, not one that is a shy person.’’

Please can you tell us a bit about when you first had the stroke?

Marwar: ‘‘Oh yeah. I remember the day very, very well up to a certain point.

I went to work that morning. My wife and my children went to see their nan for a couple of days, because it was the August holidays. So I was home alone. We have a cat, her name is Kiara. She’s a beautiful cat, but I’m petrified of cats! She’s a very quiet cat. She’s a lazy cat.

I was at home, I woke up and got my stuff ready. I showered, and that morning I decided that I’m not going to sit at home and work, because there’s nobody at home. It was boring at home, and I didn’t want to be stuck with the cat. Kiara was all over me. Like she was meowing at me so much. It was unbelievable. And that’s not her. So, I thought, okay there’s something not right… so I check the food, check her water, check her litter tray and everything was perfect. So, she started scratching. I thought this is really strange, this is not right. You know what, I’m going to go into work because I can’t deal with her! Kiara’s antics made me leave my house without having my caffeine fix in the morning. I never leave the house without a cup of tea or coffee in the morning…

Within 10 minutes, I was at work, and went up the stairs, where I have my own office. I go to the staff room which is where 12 of them sit together in a big office. The reason why I go to the staff room normally is to say hello to everybody. I’m telling you in a lot of detail here because I remember every little detail.

I put my laptop on, went next door and there was my colleague. He was making a cup of tea. I say hi to him and he offers to me make me a cup of tea. I said yes please, with 2 tea bags! He was like, ‘okay no problem’ and he makes the tea. I said to my colleague ‘that cat at home. Man, you won’t believe it, man… this is what happened. And I don’t understand’.  And he was like ’oh, I don’t know’. I then had a sip of my tea. I went next door to my office, by that time my computer was loaded up, logged in and I rang someone on Teams… someone from HR. We talk for about two minutes, and I say, ‘see you later, take care, bye’.

Then in my head, it was like a hose pipe went off. It felt so nice. Whose been in a car, stuck on the motorway and you need the toilet? But you can’t do anything because there’s traffic. Then afterwards when you can eventually go to the toilet, that’s how it felt. But I felt this on my head, and I was touching my head, and I was thinking ‘what the heck is this?’. I can see my hand… the door was open because I didn’t close it. So, I thought any minute now, somebody would walk past because there’s people in the building. I called somebody on Teams, I call the person from HR and hang up straight away. I was looking for my colleague’s name but called the person from HR on Teams a second time. But they didn’t pick up either time. I didn’t know what was happening but, my phone was on the desk… so I got my phone and called my colleague and said ‘can you come here please?’. He didn’t understand what I was saying. So I said it again ‘can you please come here’. He said, ‘what what what?’. And then I had a last bit of courage from the bottom of my feet and said, ‘please can you come here?’ and then he came. So, the first two times, he didn’t understand what I was saying. He came into the office. I was muttering constantly, he knew that there was something wrong and then he called the ambulance.

At that moment I was looking up to the sky. But I didn’t know what was happening. Everything was blurry.

My colleague went into the other room and got a few other colleagues. One of my colleagues looked at me and said, ‘yeah, he’s having a stroke’.’’

Marwar went on to explain how his work colleagues drove him to the hospital, and when he got there, he was immediately seen by the staff. His treatment started straight away.

‘‘A stroke occurs when there's an interruption of oxygen to the brain, or blood or oxygen to the brain. The one I had was the worst one you can have. Because the vessel burst in my head. I spent two months in hospital after that.’’ Marwar

So do you think that’s why your cat was acting strange?

Marwar: ‘‘Yeah, I think she probably had a sense. These animals are with you day in, day out and they know when you’re acting a bit unusual. Because of her (Kiara) I left the house. She was probably pushing me out because I was alone with her. I would have been at home, and nobody would have found me.’’

How has having the stroke impacted your day-to-day life?

Marwar: ‘‘Having this stroke has impacted my life so much. It’s impacting my life in every way you can ever think of, because now I have carers that help me with my day-to-day needs. They help me with getting dressed, having a shower. They iron my clothes for me, because they know I like all my clothes crisp… even my pyjamas!

There’s 99% of those things that I used to do before, I couldn’t do after my stroke… Now it’s improving, but I couldn’t do a hell of a lot of things that I used to do… like with my daughters. I couldn’t take my daughters out. They wanted to go out to the park. I couldn’t do that, you know. You take life for granted. You know, these are little, little things that you take for granted. I couldn’t eat on my own.’’

How have you handled the emotional side of your recovery?

Marwar: ‘‘I feel it is the support that I had from Farzana that helped.’’

Marwar had some counselling by the time Farzana came into his life. Farzana referred Marwar to Mind, a national organisation that provides advice and support to anyone experiencing mental health problems.

Farzana: ‘‘We’re one of the only housing associations in the UK that has the safeguarding team.’’

‘‘She's (Farzana) not just a safeguarding officer, she's part of our lives. That's the way I see it here, you know?’’ Marwar

And there’s a couple of people that have been with me for my journey, you know. That have helped me immensely… and Farzana is one of them in that bracket. That bracket has only got a few people in there.

She has been so supportive. I used to cry, cry, cry ,cry… and there’s a couple of occasions where I had issues. I didn’t know which way to turn, and she sorted it out. I can’t thank her enough. I really hope she can continue to support me. I really do. Because the day she stops supporting me, I’m going to be sending an email to Poplar HARCA and say ‘you know I’m not fixed yet.’’

Do you have any notable shout outs for the safeguarding team?

Marwar: ‘‘Yeah, so I have three names. Farzana, Farzana, Farzana! I remember when she was on leave for a little while, and she went the extra mile to tell her colleague to check upon me and make sure that I was alright. She (Sharma) was like, you know just checking up on you. She was so nice as well. She (Farzana) did that and you know, thank you so much for that.’

Work of Farzana Chowdhury and the safeguarding team

We spoke to Farzana about her work in our safeguarding team. Farzana is one of four safeguarding advisors who reach out to residents who may need extra support.

Farzana: ‘‘I love what we do. It could be to financially assist someone or help anyone struggling with mental health. With the safeguarding team, we do a lot of referrals to social care, adult social care, children social care, mass referrals, Mind…  all those kinds of places.

We just did an outreach programme for residents age 70+ and this week I did 33,500 steps in 2 days from home visits!’’

Can you elaborate a little on the referral process? Why do we work with specialist partners?

Farzana: ‘‘We work with several different agencies who are able to offer specialist services, theses may include but are not limited to: mental health, money management, befriending services. There is usually a professionals referral form, we would need to fill it in and the service usually contacts the tenant directly.’’

How did you (Farzana) come to be in contact with Marwar?

Farzana: ‘‘So initially it came from housing. Marwar’s wife enquired because his current home is on the 1st floor. He had about 12 -13 steps to go up in order to get to his home, and he was unable to do that to begin with and obviously he has come a very, very long way now. I was very new (to Poplar HARCA) at the time that I took on Marwar’s case.

What I initially first did was try to make contact with him. It wasn’t possible at first, because I didn’t realise that he was still in hospital at the time. So, then I did an adult social care referral and then checked our database, where we can check if these people are known to adult social care. And then I was told yes, he’s currently been allocated with carers and stuff. So for me at that point I thought okay, he has got carers. They’ve given him carers, but I need to see what other support we can offer him. So I waited for him to come home, spoke to him on the phone and then we had our initial first meeting, then literally a year later, here we are.’’

Can you give examples of what you’ve done to support Marwar?

Farzana: ‘‘I facilitated an extra pram shed (which he pays for) because his home was being taken over by his medical equipment, this was really bringing Marwar’s mood down because he felt like it was a constant reminder of what had happened, having the extra shed means his 5 year old daughter now can have her play area back.

Also, Marwar’s key which gives him access to the car park was stolen from the gate, Marwar was very panicked and called me. I spoke with housing and explained his situation, and they replaced the key for him.

I am currently working with housing and repairs to facilitate a communal banister for Marwar, due to him still being prone to falls and having had a fall very recently he has requested a handrail in the communal stair way. I am hoping this will be actioned very soon.’’

‘‘Never take for granted anybody else's situation. You do not know how things can affect people and in what sense they can affect. No two people's situation is the same and you have to treat each case as an individual case and an individual person.’’ Farzana

If you, or someone you know, would like support from our Safeguarding team, find out more or get in touch online by filling out a form on our Advice and Support page.